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Monday, October 02, 2006

In writing this post, I wasn't quite sure where to begin. I've been thinking of my blog and how it is a journal of my family and the things that we do , and the places we go, but another reason too is it can be a source for new mothers of children who have Juvenille Diabetes or Type 1 meaning insulin dependence . I don't post very much about it, because it is a very sad subject for me, but I do post every once in awhile, when I feel something's happened, and that someone might benefit from my experience. My son Josh who's six years old has been DX with Juvenille Diabetes since he was 3 1/2. For the first 2 1/2 yrs. he was dependent on 6-8 shots of insulin a day, which is extremly difficult and for all the mothers of Type 1 Diabetics who know what it is like. I pray for a cure from this very destructive and damaging disease, every day. This past year, he's been on the insulin pump, which has been a gift from God.He only needs to have his pump inserted every 2 to 3 days, so about 3 shots a week. An example of a very scary situation, that didn't turn out bad happened to my son this past Tuesday. Understanding the goal of diabetic management is too keep blood sugars between 80-150 for adults, even lower than 150 is good. For my son anywhere from 100-200 is good. With his growing and the constant energy he has, it's very easy for his bloodsugar to drop, so I try and keep it up. At his school, he visits the nurse every 2 hrs. to check and make sure his blood sugars are on target. And at lunch, the nurse counts his carbohydrates and gives him his insulin. On Tuesday, the nurse called me so upset. He had come back from recess, and he was shaking and as white as a ghost. About once a year, his blood sugars have dropped to very low. It happens, but this time it was only 77. She told me he was sweaty, and extremly clammy. She gave him a Capri Sun, and by the time I'd gotten there he was back up to 150. She'd never seen him like that, and it was very scary for her. Imagine how I feel on a daily basis. It's not like this all the time, but a Mother always worries about her children, and Diabetes adds to it. Here are a few statistics from JDRF( Juvenille Diabetics Reasearch Foundation). Diabetes is a chronic and deadly disease affecting every organ system. As many as 3 million Americans MAY HAVE Type 1, which is the most severe form of the disease. Diabetes affects 21 million people in the U.S. and 194 million people around the world. Diabetes is the single most costly chronic disease. It accounts for more than $132 billion in health-care costs in the U.S. EACH YEAR! Diabetes kills one American every 3 minutes. My son's doctor told me the best way to take care of my son is teach him good nutriton and how to eat right! He also wanted my son to be a kid, which means, he can have sugar and cookies, but in moderation, which is really what good eating is all about right. I wanted to thank all of you for your supportive comments and prayers, they mean more to me than you could imagine.

4 comments:

Kelly Curtis said...

I think this is an excellent purpose for your blog.

You may want to even include a category on the side, so that readers can easily access all your posts about diabetes?

If you just create a general post and then add your diabetes-related links to that post periodically, it would work as a category. You could link to it in your sidebar.

Just an idea. You're helping me to understand this disease.

Kelly

Anonymous said...

That is a good idea what Kelly said in her comment above; I've heard about diabetes, but I'm not really informed about it. Reading your post gave me the chills; I couldn't imagine what you must go through! Sending lots and lots of good vibes to you and your son!

Bernard said...

Christine

Despite having diabetes for 34 years, I can only partially imagine what it's like to be the parent of a child with diabetes.

Right now there are a lot of online resources about diabetes and diabetes support. You might want to start at the home page for the Diabetes Online Community.

I can heartily recommend the excellent book Pumping Insulin that has lots of tips on control and better use of the pump.

I pray that your son's control improves as you both get used to the pump.

Jennifer (mom of four) said...

Christine, Thanks for the great information. I had not idea about all the shots for such little children. I can't imagine what you go through in just a day. I got your post on my Blog today about the books I was reading and I can not figure out how to reply to your comment. So I tracked you down and am commenting on your blog for today. JEnnifer